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Support Services for Patients with Chiari

The support you receive from your family, your friends and other sources is an important component of your treatment plan and recovery. Support services for patients with Chiari 1 Malformation, syringomyelia and tethered cord syndrome are growing. As more resources become available we will update this information.

Online Support

Many of these organizations offer information about support groups, message boards, chat rooms, patient stories and much more.

American Syringomyelia & Chiari Alliance Project

Chiari Connection International

Chiari & Syringomyelia Foundation

Chiarians Unite

Conquer Chiari

World Arnold Chiari Malformation Association

Chiari Book

In February 2008, Dr. John Oró and Diane Mueller, ND, NP published “The Chiari Book: A Guide for Patients, Families, and Health Care Providers” to help increase awareness of the Chiari 1 malformation and syringomyelia, and offer hope to those who are affected.

The Chiari Book is based on the experience gained in evaluating more than 1,200 patients for the Chiari 1 malformation and syringomyelia. Illustrated with drawings and photographs, the book is easy to read and understand, and is a great reference for friends and families.

Purchase The Chiari Book: A Guide for Patients, Families, and Health Care Providers for $15.

Out-of-Towners Guide

If you are planning a visit to Colorado Chiari Institute and live outside of the area, click here to download our guidebook with recommendations of hotels, restaurants and transportation.


Publications

Chiari Medicine Blog

FAQs

So I Say Poem